News

Microsoft Hackers
8.6.14

Last week, Steve was asked to lead a team of hackers at Microsoft. He traveled to Redmond, WA to the Microsoft campus to address several hack teams during their annual company meeting and first ever hackathon. Steve challenged hack teams and the Microsoft Accessibilities group to address limitations in eye gaze technology and  to help further development of options to driving power chairs. Within 24 hours, Steve was able to steer a robot and another power chair through his eye gaze and Surface Pro 3 tablet. While that was a first step and we know there is much to do, we are confident this group can provide solutions. #empowering

Hi there.
Can u hear me ok?
Great.
I always ask that question in my speeches, but i think you guys may appreciate the concept more today. The voice you hear is my own voice. Just in the last few years, technology has allowed for custom voice builds.
At first, this may not seem like a critical piece of technology, and, like most new technology, it was too expensive, but, i now know that being able to speak to my wife n my son with my personal voice, was one of the best and most important decisions i have made.

I want to thank you all for being here today.

I had another speech prepared for you, where I talk about the history of ALS and how since the days of Lou Gehrig, there is still no viable medical treatment for ALS. But, while that is important, what means the most to me, and is absolutely critical to tens of thousands of people with ALS and other physically dependent diseases, is that until there is a medical treatment or cure, technology can be a cure.

Let me repeat that. technology can be a cure. Just to draw out how critical technology is, and how important your role is today, let me say this. If we did not have the current technology available today, I would certainly have faded to a silent death, much like Lou Gehrig did, after his famous speech.
So, to that point, everyone working on this project is working on a cure for ALS.
After my diagnosis, I asked my friends and family to join me in forming Team Gleason. At the core of our mission, is to help provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services.

Since that time, we have pursued every available option to push thatt objective.

Although I am grateful for the life saving technology I use daily to communicate, it continues to be limited and cumbersome. Technology is advancing at an incredible speed, but for those of us using eye tracking technology, we are falling farther behind the curve.

For the last two years, we have met with technology companies to engage the population of people with the most physical limitations. We believe that if you solve the most challenging problems, you will advance technology for the entire population.

I heard your CEO say yesterday, ìto ask yourself the question, what is possible for you?î He also said, ìto dig deep, push hard, and make this future a reality for us.î I am here to ask you to do thatt very thing.

I believe that the hacks we perform this week, are preliminary steps, as we ree define the word impossible.

I believe it is possible for me to read storybooks to my son rivers, in my own voice. I believe it is possible for me to hold a real time conversation with my wife michel, where she does not have to wait, as i type to her. I believe it is possible for me to drive this wheelchair with my eyes, or even my thoughts. I believe it is possible for me to lose this tablet, and use wearable technology in its place.
At Team gleason, we will continue to believe that impossible is just a word that motivates us and gives us our ultimate purpose. Thank you for your help.

Let’s get to work, and always remember, No White Flags.

Team Gleason House for Innovative Living
4.28.14

New Orleans Saints owner, Tom Benson, is donating $5 million to help operate the Team Gleason House for Innovative Living in New Orleans, LA.

NEW ORLEANS – April 28, 2014 – Team Gleason is proud to announce it has received a $5 million commitment from Gayle and Tom Benson for the Team Gleason House for Innovative Living at St. Margaret’s in New Orleans. The funds will support the ongoing efforts of Team Gleason to provide people with ALS and other debilitating conditions an environment where they can live vital and productive lives with meaningful freedom and independence.

“Gayle and I couldn’t be more proud of the work that Steve and Team Gleason are doing for people living with ALS. Steve inspires us all with his message of facing and overcoming adversity, said Tom Benson, owner of the New Orleans Saints and New Orleans Pelicans. “And, we wanted to be part of growing this community of productive individuals committed to living as independently as possible.”

“After I was diagnosed with ALS, the continued support Michel and I have received from the Saints and the Bensons has been humbling and a tremendous comfort to us both,” said Steve Gleason, former NFL player and founder of Team Gleason. “They have been like a second family to us on and off the field. With the creation of the Team Gleason House, we announced to the world that, with the right care & the right technology, ALS patients, can be productive and purposeful for decades, Gleason continued. “Through this generous gift, we are assured of the sustainability of that mission.”

Since his diagnosis in 2010, Steve Gleason has made it his mission to show that ALS patients can not only live but can thrive after this diagnosis. In doing so, he hopes to inspire others to follow his lead. The Team Gleason House is but one example of the efforts of Steve and Team Gleason toward inspiring others to challenge the norm when it comes to ALS. Whether it’s sending patients living with ALS on life changing adventures, empowering others to create life enhancing technology or fostering new initiatives in neuro-muscular research, Team Gleason is raising the level of awareness for ALS with the intent of ultimately finding solutions for the disease.

About The Team Gleason House for Innovative Living at St. Margaret’s

Team Gleason partnered with St. Margaret’s to create an ALS independent living community within their skilled nursing facility. Through the help of JP Morgan Chase and the Brees Dream Foundation, cutting edge technology was installed, allowing the rooms within the community to be completed prior to opening. Through the support of the Bensons, Team Gleason and St. Margaret’s are now focused on the long term sustainability of the home by developing the community to its fullest potential with environmental changes, additional staff training, advanced equipment, community partnerships and mentoring programs.

Mustang Raffle Winner
12.29.13

Congrats to Jeffrey Roberts from Alabama! He is the winner of Steve’s 1965 Mustang! Thanks Jeffrey and Thanks to all who entered and support Team Gleason. No White Flags!

ALS Summit 2013 New Orleans
3.20.13

Team Gleason Summit Sets Pathway for New Treatments and a Cure for ALS.

Steve Gleason, former NFL player and New Orleans cult hero who was diagnosed with ALS in 2011, held the first Team Gleason Summit for a Cure on June 27-28 with a historic announcement that some of the world’s leading scientists agreed on an action plan to cure ALS.

For two days, scientists, clinicians, people living with ALS, their caretakers, advocates and associations came together to try and establish a roadmap for fast-tracking new treatments and a cure for ALS. Webcast live to over 2000 people in 15 countries, the Summit produced innovative results.

Attendees included representatives from Harvard University, Johns Hopkins University, Cedar Sinai Hospital, St Jude Children’s Research Hospital, Emory University, Massachusetts General Hospital and more than 50 other leading organizations.

Three key areas were identified by the participants as being critical to rewriting the future of the disease in the short term.

  • 1. Establishing a national program to create biomarkers for ALS
  • 2. Collecting and deep-mining data in new ways to identify possible new avenues for treatment development
  • 3. Reducing the cost and time for clinical trials that provide treatments from “bench to bedside”
    These three areas fit into a larger list of 10 priorities that will be further developed over the coming weeks into a collaborative action plan for a cure.

 

Team Gleason PSA video
3.20.13

This video was created for Steve’s football family – the players and coaches of the NFL – to show that whether they had lined up with him or against him on the field of play, they all support him in his fight against this cruel and unrelenting disease.

These great players all stand by Steve’s belief that everyone who gets diagnosed with this disease has the right to fight, has the right to proper treatment and to the best available care. And they believe, like Steve does, that ALS is under-funded, under-resourced and largely ignored. And that this is NOT okay.

    This video represents the players’ commitment to do something:

  • To take ALS out of the shadows and get people talking about it.
  • To get the best and brightest scientific minds together and ask them what they need to cure ALS.
  • And to make some noise, pressure the right people and raise the money to make it all happen.

This video is a message from these elite players, among the best and strongest in the world, to all the victims of this horrific disease to say: We’re all in this together. And it’s an invitation to the rest of the world to join the fight, and put all of our heads together to find a cure for ALS.

See more Team Gleason videos here

Half Marathon

Team Gleason Endurance Challenge – Rock ‘n’ Roll Marathon New Orleans
2.24.13

For the second time in less than 6 months, Steve Gleason will complete 13.1 miles when his brother-in-law, Vinnie Varisco, pushes him along the course in a specially equipped, customized wheelchair. Varisco usually runs a half-marathon in less than 90 minutes, but took an hour and 52 minutes in their first race last October. “It’s more difficult. But again, it’s all relative, “ Varisco said. “Very rarely will you hear me or anyone around Steve complaining about something being difficult when you see what he goes through on a daily basis.”

Joining Steve and Vinnie in the race will be Pearl Jam guitarist Mike McCready. McCready friended Steve when he attended the PJ20 Festival in 2011 celebrating Pearl Jam’s 20th anniversary. In addition to running, McCready will also perform the National Anthem to kick off the race as a representative of Team Gleason.

Many runners and walkers from across the country are joining Steve and Vinnie in New Orleans in an effort to raise money and spread awareness for ALS and The Gleason Initiative Foundation. Any donation you make is not only 100% tax deductible, but greatly appreciated by Steve, his family and others who are affected by ALS.

Click Here To Donate.

read more >>

Chase Announces Major Gift to The Team Gleason House
1.17.13

Chase announced today a $350,000 grant to The Team Gleason House for Innovative Living, funding the development of technologies that will help ALS and MS patients continue living more productive and purposeful lives.

The Team Gleason House will be located at St. Margaret’s Skilled Nursing Residence and will be the second U.S. facility of its kind. The collaboration between Chase and Team Gleason also supports New Orleans’ effort to develop a thriving BioDistrict and support innovation as a means to strengthen the local economy.

“The Team Gleason House was only a dream less than a year ago. Through our efforts and the extraordinary efforts of Chase and St. Margaret’s, we have realized that dream so ALS patients can continue to live, thrive and contribute to the community,” said Steve Gleason, founder of Team Gleason. “Until there is a medical cure for ALS, technology is the cure and we are proving that today.”

Click here to read more about the Chase story.

Join Team Gleason Denver for Golf Fest 2012
7.30.12

Monday, July 30th, 2012

Check-in begins at 9:00 AM. Tee off at 10:00 AM.

Blackstone Country Club. Aurora, Colorado.

Sack A.L.S. on May 31st
5.31.12

Team Gleason Los Angeles event was a huge success!! Over 240 people came out to support us and we had over 50 silent and live auction items donated by friends, family and local businesses. It turned out to be a beautiful night with gorgeous views of the ocean, great music, fascinating speakers and delicious food and drinks. Needless to say, a fabulous time was had by all. We raised over $85,000 for Team Gleason! We were humbled and inspired to feel the support and strength of the community coming together to fight this terrible disease.

The Steve Gleason Classic Golf Tournament
6.25.12

Join us at The Golf Club at Black Rock in Coeur d’Alene, ID to raise money for the The Gleason Initiative Foundation.

Get More Information Here

Team Gleason Making It Right
3.10.12

Steve and Michel attended Brad Pitt’s Make It Right Gala with local ALS patient Beth Crutcher. It was a once in a lifetime opportunity to see Brad Pitt, Rihanna, Seal, Ellen DeGeneres, Snoop Dogg, Drew Brees and many more A-list.

610 Stompers Peep Show
3.1.12

610 Stompers invite you to become a Virtual 610 Stomper to benefit Team Gleason and The ALS Association.
Win the Virtual 610 Stomper “Peep Show” fundraising dance competition and become a 610 Stomper for a day. New Orleans’ favorite all-male dance team, the 610 Stompers, invites you to show off your extraordinary moves to benefit Team Gleason and the ALS Association. As part of the competition (open to all men and women over the age of 21) participants go to www.610stompers.com, learn a dance online via our instructional video and post the dance (and freestyle dance) on the “Peepshow.” Friends and family can “reveal” the dance by donating money to raise the virtual curtain.
Start dancing!! www.610stompers.com

Abita St. Gleason
2.09.12

Steve Gleason received an honor specially brewed just for him. Thursday night at the Hyatt Hotel, Abita Beer released a special brew as a tribute to the former Saint. It started as a Facebook contest, and the name selected as the winning label: Saint Gleason Imperial Red Ale. The ladies who suggested the winning name dinned as special guests of the Gleason family at Thursday night’s event. Abita Beer will donate 25 cents from the sale of each pint of beer to the Gleason Family Trust.

The Abita St. Gleason is available at:
THE BULLDOG (MID-CITY)

ABITA BREW PUB

THE BULLDOG (UPTOWN)

COOTER BROWN’S

RYAN’S IRISH PUB

BRUNOS TAVERN

AVENUE PUB

LAGER’S ALE HOUSE

NEW HOTEL MONTELEONE

RED FISH GRILL

SWAMP ROOM

FINN MC COOLS

BOURBON HOUSE

SLICE PIZZERIA

LE BON TEMP ROULE

45 TCHOUP

CRESCENT PIE & SAUSAGE CO

SLICE PIZZERIA (MAGAZINE)

THE DISTRICT

BORGNE RESTAURANT

COLUMBIA ST.TAP ROOM

Superbowl 46
1.5.12

In keeping with Steve’s mission to “raise public awareness toward ALS by providing and documenting extraordinary life adventures for individuals with muscular diseases or injuries”, Team Gleason is sending two people living with ALS to Superbowl 46. They will attend the game with Steve, have access to the NFL Experience, meet NFL players and attend dinners and parties. “This is a once in a lifetime chance and I thank Steve and Team Gleason for giving me this opportunity,” said Dudley Jourdan, who has ALS and is a lifelong Saints and football fan. “You have no idea what this means to me,” he added.

Team Gleason Skydive NOLA
1.7.12

To answer the question of what to do on Steve’s one year anniversary of being diagnosed with ALS, his response was to take a large group of people skydiving in New Orleans. The event raised funds for the Gleason Initiative Foundation and friends and family jumped from a plane for Team Gleason. Steve himself was one of the first to go and the inspiration for the rest to follow.

Blocked Punt Lithograph by artist Michael Hunt
12.15.11

The Gleason Initiative Foundation, Drew Brees and NOLA Fine Art released this, first ever, limited edition punt block lithograph. “I was there the night of Steve’s famous blocked punt,” said Hunt. “It was a storybook beginning to a second chapter for New Orleans. I believe Steve’s fight with ALS is an inspiration to all.”

Click Here for Exclusive Footage of The Gleason Lithograph Unveiling

Gleason Gras
11.17.11

This first annual music event, featured local music, a silent auction, a kids’ area, an autograph tent with Saints players and a mustache contest. A well attended event, Drew Brees, Sean Payton and many others were there to toast Steve and the Team Gleason efforts. Proceeds benefited the Gleason Family Trust, which helps the Gleasons offset the incremental costs of living with ALS and helps fund Steve’s participation in advanced and experimental technology, equipment and treatments. Better Than Ezra, Preservation Hall Jazz, Papa Grows Funk, Big Sam’s Funky Nation, Kyle Turley Band and others headlined the event