Inspiration by Steve Gleason
Athlete’s express themselves physically, this is their art. As an athlete, exhausting oneself on the field or on the track or on the trail or on the mountain brings calm and satisfaction. Thrashing about… our expression. I have lost most of this ability.
I tried to keep some sort of balance in my life while playing sports so I looked for other outlets to express myself. One of those outlets was writing. Others, music and photography. I am unable to play guitar now but I’ll always be able to write and listen to music. I have picked up filming as another creative outlet. The Inspire page is my playground to continue to thrash about.
Most pALS must choose btwn: a) silence b) archaic communication. IE. blinking c) paying $20k for a system weaker than ur 1980s computer -SG #detAiLS I posted this on Twitter & Facebook on 12.29 2012. The general reaction was astonishment & a call for change. There was also, though, several responses asking what I was [...]
Well. Let’s get to it. Yesterday I met with one of the best Amyotrophic Lateral Sclerosis (ALS) physicians in the world and he diagnosed me with ALS. I have spoken with everyone on this email chain in the last few weeks so I think most know the ‘deal’. Below is a YouTube link. If it [...]
I have not spoken with one person who understands the upcoming 3 day per week publication of the New Orleans Times Picayune. I have heard the dismay of readers and the pleas from both the community and employees as they anticipate reductions this fall. As someone who’s lost most of his physical abilities over the [...]
I know, football is just a game but when I was seven I remember crying after the Seahawks lost a playoff game. Across the country fans aged 7-70 closely tie their emotional status to the outcome of their beloved teams. As I grew older I became more focused on my development as an individual player. [...]
“I am from the mountains and wandering Rivers yet I am aware of this life’s sacredness no matter where I sit. With every breath that I give, I am free.” As your birth approached and the name emerged, I began to think about why I love Rivers… When I was young I spent my summers [...]
Tonight I was inducted into Gonzaga Preparatory High School’s hall of fame. I chose not to go because I wanted to stay close to Rivers and Michel. ’Prep’ has had a huge influence on my life and I tried to capture that with this letter that my father read in my absence: Thank You all for [...]
In its simplest form, football is just a game of boys. But in this game there are so many lessons that correlate to life outside the game. For me that correlation has never been stronger than it was yesterday. Sometimes in life, despite your efforts, things don’t go your way. Yesterday, we found ourselves 10 [...]
After Steve was diagnosed with ALS in 2011, one of the actions that he and Michel undertook was to create a library of video journals for their child (due October 28th). These journals share memories from their lives and address the important topics of life. The process has been emotional and challenging but ultimately, fun [...]
In January 2011, I was diagnosed with Amyotrophic Lateral Sclerosis (ALS) A disease. Terminal. Approaching 34 years of age, I do not fit the typical ALS criteria as I am ‘too’ young. An Outlier. Although there are currently no medical solutions for this disease, I believe my body can be healed. Honesty leads to Grace [...]