Acting on our Mission

After Steve was diagnosed with ALS in 2011, one of the actions that he and Michel undertook was to create a library of video journals for their child (due October 28th). These journals share memories from their lives and address the important topics of life.  The process has been emotional and challenging but ultimately, fun and very rewarding.  The creation process has involved friends and family and has enlisted a whole pack of new friends generously offering their time, resources and love as members of Team Gleason.

Here’s a raw clip from a Video Journal that Michel and Steve shot at Glacier National Park. The Journal describes how Michel and Steve first met. Watch out for mosquitoes!

 

 

Our mission has just begun and we need all the support you can offer so ACT.  Join Team Gleason Now

16 Responses to “Acting on our Mission”

  1. Susan Ratliff Kilby
    September 25, 2011 at 10:12 pm #

    I admire your strength and courage! My 31 year old nephew has battled ALS for the past three years. He now lives in an assisted living facility near Nashville. He lost his wife last year to MS. They had only been married 3 and a half years. I know the struggle he has everyday. I pray that there will someday be a cure for this horrific disease! Stay Strong….Journey On!

  2. Rick Pohlmann
    September 26, 2011 at 2:49 am #

    This is a great video you both look like great people and sorry you have this monster disease ALS. You are doing this video on the same day at 8:02 pm that my wife died from ALS. So hope to see you at the Walk to Defeat ALS on Oct. 1st.

  3. September 26, 2011 at 3:57 am #

    I love you guys,
    Auntie Moll

  4. Troy Hughes
    September 26, 2011 at 7:05 am #

    Steve, just found out, like most of us, what you are battling. I have always been inspired by you, even in the early years back in high school. You continue to inspire today by focusing so hard on the important things in life and putting your energy into making others’ lives better. We have been given this day to use as we will–you are an example of how we should all use our days. Stay strong, your fighting spirit always inspires others and continually allows you to do what some say can’t be done.

    Troy

  5. Paul Wilkerson
    September 26, 2011 at 3:22 pm #

    Steve.. I just wanted to let you know how much of an inspiration you were, and are. I have had my own battles with life and death, and seeing your zest for life through it all is absolutely amazing.. thank you for everything..

  6. Jeff Helminger
    September 26, 2011 at 7:03 pm #

    They say a life is measured by the amount of lives you touch and influence. I will never forget the care and compassion you brought during all your visits to Children’s Hospital. You are a genuine human being who has showed strength and courage even at life’s most difficult moments. Stay strong and continue to achieve greatness. Prayers and positive energy are being sent your way.

  7. Dan Merrill
    September 27, 2011 at 2:31 am #

    Steve,

    Fellow Coug here. I have had the honor of tailgating with you Mom a couple times before WSU games. Once at the AC in Seattle. Our cougs didn’t fare too well in that one but it was a blast getting to know Cougmaw. She is the greatest!!

    Great stories, love the videos and appreciate the blog you and Michel are putting together.

    All of us were/are shocked to hear the news regarding your battle with ALS, however as one poster on Cougfan.com put it “ALS has Steve Gleason, not the other way around”

    Love ya brother, thanks for everything you are, everything you do and the inspiration you give us all.

    Gotta go. Need to order me a couple of “Better Now Than Never” T’s.

    Go Cougs!!!

  8. Jaime (Tolbert) White
    September 27, 2011 at 3:30 am #

    Hello Steve, I’ve always kept an eye out for stories of you during your playing days and it is with a sad heart that I read your latest story. But I’m also very happy for you; I can’t wait for you to feel the joy of your new baby! Nothing beats it. Love and prayers from Spokane.

  9. megan
    September 27, 2011 at 5:40 pm #

    Steve – we’ve got mutual friends (Moses, have know his since jr. high and actually saw him briefly in Bozeman when he returned from his PJ adventure with you) and the Kinkades (Mike was my college roommate & they remain close friends).
    My cousin was diagnosed w/ALS at 37, what you are doing is truly inspiring. You have our support and karma.
    mm

  10. Becky Menzel
    September 29, 2011 at 12:14 am #

    This quote reminds me of you~ “Life should not be a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside in a cloud of smoke, thoroughly used up, totally worn out, and loudly proclaiming “Wow! What a Ride!”― Hunter S. Thompson. You are in my thoughts and prayers as is your baby girl. Becky

  11. Kim and Kevin Vanderbrook
    September 29, 2011 at 12:42 am #

    Awwww… you guys. Just watched this with my little guy Finn and he is looking forward to growing up with your little babe. We love you guys and your family.
    Love,
    the Northshore Nation
    Kevin, Kim, Lucy and Finn

  12. Brad Powell
    September 29, 2011 at 12:52 am #

    Steve / Michel,

    It takes a lot of courage to live your life so publicly, especially with this diagnosis.

    I have not lived in Louisiana for almost 10 years (hopefully I will be back soon), but I have always remained a Saints fan, and I was in the Dome the night you blocked that punt. You have packed a lot of life into your first 37 years, and you have lived your life fully. I was sad to hear of your diagnosis, but I look forward to seeing how you will attack this disease.

    God Speed.

  13. Jackie Pellhum
    September 29, 2011 at 3:39 am #

    My heart goes out to both of you. Steve, I was so happy to see you on that field Sunday. I have been a fan of yours for many years, not because of football, but because of your work with charities. You are an inspiration to many people, and surrounded by so much love. May God bless you always.

  14. Ains
    September 29, 2011 at 2:35 pm #

    I remember that Jazz Fest day very well. I vividly remember Mich pointing at Steve and saying “don’t you think that boy’s kinda cute?”.
    And I remember Steve’s brother really embracing Spitz’s joie de vivre.
    Good Times.

  15. Jodie Fox
    September 29, 2011 at 7:44 pm #

    My heart is heavy with the news of your disease. You are an inspiration to anyone who knows you and the ones that may not. Your undeniable courage goes without saying.
    They say a life is measured by the amount of lives you touch and influence, you will forever influence the way I live my life from now on.
    Our thoughts and prayers are with you and Michel!
    May God Bless you always,

    Jodie (Slackman) Fox

  16. Jim Vincent
    October 1, 2011 at 1:21 pm #

    Steve/Michel,

    This is such a beautiful way of stating your initial meeting, and the love that followed in your life. Thanks fo sharing.

    When you thought of others almost 2 years ago of coming to my wife Moe’s 50th birthday party in Westwego, (out of the blue), our entire group of friends and family thought so much of ya’ll to do this. It meant the world to Moe. She was so, so surprised. Thank you for that memory. *BTW* your dad is so cool.

    Good luck w/ this thing. I don’t like naming names to obstructions. I try to think like football in my everyday life. It’s an obstruction that either has to be gone through or around. My engineering background makes me think that way. To deal with items that usually can’t be changed.

    God Bless,
    Jim & Moe